Julie is in stable condition.
This marks the last leg of the United Airline return jaunt from North Carolina.
I'm sitting at United's Gate B92 using the DIA "free" wi-fi for connectivity. Other than a tight keyboard, the Little Asus Eee PC works fine for travel. It is short on memory, so toggling between windows makes it difficult to make links. That is a problem easily solved by adding a few extra dollars to the memory for an upgrade.
And I was disappointed that the hospital which I visited had a strong firewall which made emailing a hassle.Otherwise, the Eee PC worked fine.
A few random thoughts while on the plane from Chicago to Denver:
My cell phone was virtually unusable this trip because I brought the wrong phone battery charger, so this trip was similar to traveling 20 years ago without cellular service. My bad for not getting the correct charger. I heard yesterday that Cindy McCain has three blackberries to keep up with her seven children. I could not manage even keeping one cell phone energized.
Sarah Palin puts down her IPhone and picks up the breast pump at any given hour in her life; I barely wended my way back and forth from the motel to the hospital without making lots of wrong turns and missteps on exits. Speaking of Sarah Palin. I. Love. Her. Can you image relating to H.R. Clinton on that level? Uh uh.
Much more later; my flight is boarding.
Thursday, September 4, 2008
Monday, September 1, 2008
Reflections from the Bedside
Update on daughter Julie: lab reports are good, appliances are working, except for her shunt which diverts CSF (cerebrospinal fluid) for her hydrocephalous.
Chair side observations IMHO:
1) Nurses are overworked and stressed;
2) Hospital food is generally tasty;
3) The general public does not understand the importance of hand washing;
4) Hierarchical symbolism in the hospital has changed over the past few years -- every direct patient care provider slings a stethoscope around their neck and wears scrubs. Therefore, doctors distinguish themselves as "physicians" by wearing a sport coats over their scrubs, and leave steths to the assistants
5) RN's are the only nurses employed here at Carolinas Medical Center; LPN's are a thing of the past;
6) 12 hr. shifts are the norm for RNs; charting is half their workload;
7) Lab results still get misplaced/lost. (Julie's most important CSF labs are still "missing" after five days, and the risk of tapping her shunt for more lab work is risky.)
8) Drama is constant; one does not get too excited over minor crises;
9) Common courtesy is often overlooked by patients; a sense of entitlement often pervades the patient's outlook;
10) Ensure that the patient visitor can take care of themselves in all ways before "visiting" the patient, or the visitor will be a burden to all concerned;
11) An hallucinating patient can almost make one believe an outlandish story, simply because they are so convinced of their own reality;
11) In general, people surely do complain about minor annoyances;
12) Pain control is better managed.
Update on daughter Julie: lab reports are good, appliances are working, except for her shunt which diverts CSF (cerebrospinal fluid) for her hydrocephalous. She is to have more x-rays this hour to determine the amount of CSF fluid around her lungs.
Julie is stapled all the way from her clavicle to her bottom. She is quite coherent and the hallucinations have abated. She is not in pain.
Hurricanes, the Republican National Convention, and life goes on.
Chair side observations IMHO:
1) Nurses are overworked and stressed;
2) Hospital food is generally tasty;
3) The general public does not understand the importance of hand washing;
4) Hierarchical symbolism in the hospital has changed over the past few years -- every direct patient care provider slings a stethoscope around their neck and wears scrubs. Therefore, doctors distinguish themselves as "physicians" by wearing a sport coats over their scrubs, and leave steths to the assistants
5) RN's are the only nurses employed here at Carolinas Medical Center; LPN's are a thing of the past;
6) 12 hr. shifts are the norm for RNs; charting is half their workload;
7) Lab results still get misplaced/lost. (Julie's most important CSF labs are still "missing" after five days, and the risk of tapping her shunt for more lab work is risky.)
8) Drama is constant; one does not get too excited over minor crises;
9) Common courtesy is often overlooked by patients; a sense of entitlement often pervades the patient's outlook;
10) Ensure that the patient visitor can take care of themselves in all ways before "visiting" the patient, or the visitor will be a burden to all concerned;
11) An hallucinating patient can almost make one believe an outlandish story, simply because they are so convinced of their own reality;
11) In general, people surely do complain about minor annoyances;
12) Pain control is better managed.
Update on daughter Julie: lab reports are good, appliances are working, except for her shunt which diverts CSF (cerebrospinal fluid) for her hydrocephalous. She is to have more x-rays this hour to determine the amount of CSF fluid around her lungs.
Julie is stapled all the way from her clavicle to her bottom. She is quite coherent and the hallucinations have abated. She is not in pain.
Hurricanes, the Republican National Convention, and life goes on.
Wednesday, August 27, 2008
Urinary Diversion Surgery @ Carolinas Medical Center
Previously, in this NPR Story Corps post, I wrote about our daughter, Juliet, who was born with the birth defect of spina bifida and hydrocephalus. I am writing today about her ongoing surgical experience at the Carolinas Medical Center-University.
Julie underwent a day long surgery Tuesday at the Carolinas Medical Center in Charlotte, North Carolina. Generalized information about this type surgery can be found at Surgery Facts. Another website with more stats can be accessed here at More Information. The procedure was a major ordeal, as the websites explain. I talked with the nurse a few hours ago; she was in stable condition.
Further complicating matters was the additional removal of previously undetected extended, large ovarian masses which pushed the surgery to over ten hours in length. She currently has a nasogastric feeding tube and a pic line for intervenous medication delivery.
Julie is being cared for through the McKay Urology Group, "dedicated to the highest standards of clinical care, research and education with the latest urologic technology". Its programs are nationally recognized for quality and were named as one of the Top 50 Urology Programs in the nation by U.S.News & World Report 2008 edition of America's Best Hospitals.
I am told that Julie's surgeon, Michael Kennelly, M.D., a principal in the McKay Group, is known nationally in this urological practice. She was fortunate to get a referral to this physician and practice.
More about the birth defect she was born with can be accessed at The Spina_Bifida_Association or at Spina Bifida Facts.
Here is a picture of Julie and her dog Muggsy taken last January:

Prayers for Julie and Jack, her husband, are appreciated.
Julie underwent a day long surgery Tuesday at the Carolinas Medical Center in Charlotte, North Carolina. Generalized information about this type surgery can be found at Surgery Facts. Another website with more stats can be accessed here at More Information. The procedure was a major ordeal, as the websites explain. I talked with the nurse a few hours ago; she was in stable condition.
Further complicating matters was the additional removal of previously undetected extended, large ovarian masses which pushed the surgery to over ten hours in length. She currently has a nasogastric feeding tube and a pic line for intervenous medication delivery.
Julie is being cared for through the McKay Urology Group, "dedicated to the highest standards of clinical care, research and education with the latest urologic technology". Its programs are nationally recognized for quality and were named as one of the Top 50 Urology Programs in the nation by U.S.News & World Report 2008 edition of America's Best Hospitals.
I am told that Julie's surgeon, Michael Kennelly, M.D., a principal in the McKay Group, is known nationally in this urological practice. She was fortunate to get a referral to this physician and practice.
We trust that Julie is receiving state of the art medical care from both her physicians and this teaching hospital affiliated with the University of North Carolina. I will be going to visit Julie in the next few days. This blog will be intermittently posted while I am away from Colorado and staying in a hotel nearby the medical center in Charlotte.CarolinasHealthcare:
Dr. Kennelly was one of the first physicians in North Carolina to subspecialize in female urology and neurourology; and, he is currently one of only three doctors in the state who concentrates in these highly specialized fields.
More about the birth defect she was born with can be accessed at The Spina_Bifida_Association or at Spina Bifida Facts.
Here is a picture of Julie and her dog Muggsy taken last January:

Prayers for Julie and Jack, her husband, are appreciated.
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