Pulmonary Hypertension and No Surgery

Julie was flown over to Denver Monday night with a flight nurse, arriving at the Aurora Anschultz Campus, where the University of Colorado Hospital is located, along with Children's Hospital. She flew with Full Armor.  Thank you, friends and family, for holding her up in prayer.

A shunt revision, for Julie, with many complications due to spina bifida, is no longer a viable possibility at her age and stage.  Over the past 48 hours, she has been and is still being evaluated by seven medical specialty teams.  She is on contact precautions this morning, meaning gloves and gowns are required by anyone entering her room, and remains in the ICU.  I will get breakfast in one of the dining areas prior to going into her room.  Then back to gown and gloves and reading to her before leaving her room again for lunch.

But the good news is that her involved problems have led the neurological and cardiac teams to a likely reason for her shunt related pressure problems: atrial pulmonary hypertension.

Mayo Clinic has a video explaining this medical complication, but I cannot seem to find the link on this iPad to make it work on the Blogger platform.  If googled, it is easily found.

Treatment to get this pulmonary hypertension under control will require medications to draw off fluid from around the lungs, decrease of salt intake, weight loss and fluid restrictions, along with a usual cardiac diet.

Julie will remain here at University of Colorado Hospital for a few more days, and more tests.

Word Chum friends, playing words will be one of my activities on schedule today.  It would be for Julie also, but we are having issues with charging her device.  Must charge up her Kindle Fire so she can get back to work with Word Chum power!  In the meantime, we will be reading aloud.

PS:  I drove over Vail Pass yesterday to get here.  The Pass had high winds and blowing snow, and I was driving the seventh car in line behind four snow plows, so I felt led over in a special way on dangerous highways

Surgery Update

And now it is Monday, the last day of February. 

Turtle with its broken shell is a get well card from Kathy to Julie, who remains in the hospital with a headache from an accumulation of CSF.  

Early Saturday morning, it was the desire of the neuro team at the hospital to have her taken over to Denver for surgery, but I pitched that it was not in Julie' best interests to have her transported there, for more than a few good reasons.  Julie concurred.  So she remained in hospital here over the weekend until a different surgeon was back on duty today who might be willing to take on her challenging case.

Twice over the weekend her shunt was tapped and excess CSF fluid removed, lessening the headache.   But nausea and headaches continued.

Now it is time to put on the Full Armour of God and go see what the day brings.  Hopefully, some relief for Julie and a surgery to "fix the problem."  

Her name is in the prayer book at Immaculate Heart of Mary.  If you are a praying person, please remember her in your talks with the Almighty for grace in her time of need.  God bless.

Shunt Revision

IT is Friday and Julie has spent the last twelve hours both in the hospital ER and in a room with a view.  The view is of the parking lot, but a view nonetheless.

The ventricular arterial shunt has been causing Julie problems and she is facing a revision soon after the neurosurgeon on-call finishes up with a surgery.  The Physician Assistant, a pleasant man in his early middle years, finished with his assessment this last hour.  Julie's headache is manageable with Fentanyl and other pain medications.  It would be a stretch to say she is resting comfortably, but she is tolerating this newest ordeal with her usual perseverance.

Her blanket brought with her by ambulance from the manor is at home in the wash.  Gene will bring it later today.  My red pillow and iPad and phone are close at hand.  Julie rests, or feigns rest, and waits.